The bad news. Emma is getting sick a lot right now(no hospital at least), it makes living with Diabetes hard on her. I hate that. As a result, her latest A1c came in high at 9 something. I knew it would because of the blood sugars I have been battling. It's still really hard to accept. It was one of the harder diabetes management appointments. Emma's behavior is the same when she has diabetes problems or meltdowns. With the communication barrier I can't ask, so I rule out the most problematic scenario first. I check her blood sugar, if that's ok, I can move on and keep digging to find the source. Technically, if you understand how insulin works you shouldn't need to check within at least a 3 hour period. Emma's management is different, I guess. When I do check her blood sugar within the 3 hour period, more times than not a problem has evolved with her diabetes. Not only that, but she is sick all the time and pulls out her pump site a lot. It makes her blood sugar really high and forces me to check her more than normal. It leaves me feeling anxious all the time because I never really know what I'm dealing with, checking her often is my only link to sanity. Her endo kind of gave me a hard time about the number of times her blood sugar is checked this time, actually he kind of made fun of me. I wanted to explain to him our real life side of living with diabetes. I simply just said that she was really hard. I cried on the way home. He really has no clue what I go through with her, so it definitely struck a nerve. I'm still trying to decide if I'm going to find a new Endocrinologist. Emma is having problems with her ears again and isn't sleeping very well. Since before Thanksgiving she is up more than half the night. It's wearing us down for sure. She started getting back to back ear infections so I knew she needed to be seen by her ear, nose doctor. We met with him on Dec. 23rd and found out that she has a retracted eardrum. She's getting tubes put in for the 4th time on Jan 14th. This should help with her eardrum as well. He thinks that the eardrum is why she's not sleeping. The plan is to fix her ears first and if she doesn't start sleeping, then we'll keep digging to figure out what is going on. I'm starting to worry about her hearing, especially in her right ear. He said her eustachian tube is dysfunctional, which is causing the problems. I worry that we'll never get it under control and she will develop permanent hearing loss. Emma is not eating all that great right now either. She is gagging a lot on foods that she used to eat just fine. I'm trying to figure out if we're dealing with oral sensory issues again or if she is just being stubborn. Her weight isn't being affected yet. Her carb intake is pretty sad, so I need to keep an eye on it. All in all-nothing too bad, Emma's everyday stuff is just causing a few bumps in the road right now.
The ugly-This has to do more with my protective side of her. Lately, I have reached a breaking point in hearing the "r" word. If you stopped to notice, you would be surprised at how many times people used the word retarded. It makes me upset when I hear it. I've actually had people call others "retarded" in conversations with me. It's mind boggling to me that people don't realize that they are slamming people like Emma every time they say it. I'm just doing my part to help spread the word to stop the word. Please be aware of the words you use. You can check out the campaign here .