Tuesday, November 15, 2005

The missed signs

In hindsight, it's easy to see that all the main warning signs for type 1 diabetes were there, we simply didn't know them. It started with her leaking out of her diaper, we just thought she needed a bigger size. She ate A LOT. We thought we were really lucky to have such a good eater because a lot of children with Down syndrome have feeding issues due to sensory problems. We celebrated the fact that she ate so much. All of these started maybe a month before she was diagnosed, but after the pneumonia we probably noticed them the most but didn't think much of it. So, beware, it can set in really fast.

We try not to blame ourselves anymore, we're just now determined to tell people Emma's story in an effort to help even just 1 family or person not get to the point Emma did. Emma was not a likely candidate, she was barely 1 year old, and with all of our focus on Down syndrome and her other complications it's easy to see how we could miss it.

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